Letters From The Lifesharing Safeguards Project
John O’Brien & Helen Zipperlen
Sept 1993 CAMPHILL VILLAGE KIMBERTON HILLS
Foreword …………………………………………………………………………………………………………….. 5
To the reader ……………………………………………………………………………………………………….. 7
To a younger parent…………………………………………………………………………………………….. 11
To an older parent ………………………………………………………………………………………………. 17
To an ecologist …………………………………………………………………………………………………… 21
An ecology of lifesharing ……………………………………………………………………………….. 23
To a young lifesharer …………………………………………………………………………………………… 25
Qualities of excellent lifesharers ……………………………………………………………………… 28
Forms of power ……………………………………………………………………………………………. 29
To a lifesharer facing a wrenching decision ……………………………………………………………… 33
To a lifesharer in crisis …………………………………………………………………………………………. 37
To a case manager ……………………………………………………………………………………………….. 41
To a family living co-ordinator ……………………………………………………………………………… 43
To a friend …………………………………………………………………………………………………………. 47
Community ………………………………………………………………………………………………… 50
To a friend in lifesharing ………………………………………………………………………………………. 51
A tentative conceptual map of safeguards for lifesharing households ………………………… 54
To a lifesharer exploring safeguards ………………………………………………………………………… 61
Invitation ……………………………………………………………………………………………………. 65
Healthy community ……………………………………………………………………………………… 66
Some notes on renewal visits ……………………………………………………………………………… 68
An open letter to a state administrator ……………………………………………………………………. 79
The changing situation of citizens with developmental disabilities and the accountability
of certain places in between……………………………………………………………………………….. 84
People and organizations interested in lifesharing……………………………………………………… 99
Books helpful in understanding lifesharing ……………………………………………………………. 103
Chronology of the Lifesharing Safeguards Project …………………………………………………… 107
